Two years after the initiation of the Mexican Lupus Registry, a research project led by the National University, the collection of clinical and sociodemographic information on individuals with lupus has been ongoing. Ana Laura Hernández Ledesma, a member of the International Laboratory for Human Genome Research at the National Autonomous University of Mexico (UNAM), located in Juriquilla, Querétaro, reports that there are approximately 2,000 registered patients from all states of the country.
The registry was established due to the need for a comprehensive database. Initially, the goal was to analyze the genetic variants associated with lupus in the Mexican population. However, researchers discovered a scarcity of data regarding individuals suffering from the disease in Mexico. Consequently, the project addressed this gap by identifying and collecting information about lupus patients, including their demographics, characteristics, and requirements.